What’s Next

The past several days since Adeline’s operation last Friday have been spent focusing in on what is important. We have taken these days to spend family time together and it has been wonderful. This time of year is special and helps me refocus on what is truly the most valuable thing in life. As I reflect upon this year, I realize how much we have been blessed with and it overwhelms me – for the experiences Greg and I have had to travel the world, for welcoming our precious Adeline in June, for the opportunity I have to get to stay home with her, good health and happiness, celebrating a year of marriage, and the list goes on. Today I am also thankful for Friday’s procedure. That may sound funny since it was not successful, and although we did not get the results that we were hoping for, we have so much to be grateful for including the wisdom of Adeline’s doctor and all the other orthopedic specialists who are helping children and adults battling Hip Dysplasia, for treatment options, and for the chance we have to plan a fundraising event in February to raise awareness. A lot of things we never expected have come out of this journey and we know God is at work.

I wanted to share a little more details from her procedure and where we go from here. On Friday Adeline’s surgeon attempted to manipulate her hip back into place without making an incision, in basic terms. For those who like medical terminology, he was attempting to put her femoral head back into the hip socket while she was relaxed under anesthesia in what is known as a closed reduction. Assuming there would be a better chance at movement with her asleep he would make a very small incision to insert dye that would help guide him as he monitored the placement on the screen and if needed, he could clip a tendon to give some more release and make it easier to place (I think I got that description right!). For Adeline, we learned she has a severe case of dysplasia on her left side and her doctor knew pretty immediately it was not budging and the closed reduction would not work for her. There is something blocking the hip from being able to go into the socket; it could be fat tissue or cartilage that has built up in there over time, we aren’t sure. Within about 20 minutes or less he came back to our room to deliver the news and within about 10 more minutes we heard a hungry baby being carried down the hall and Adeline was back in my arms ready to eat.

The next step in her treatment will take place when she is about 9 months old (in March) to give a chance for her bones to mature some more. That operation is called an open reduction. This surgery will be more involved, invasive and take a little longer and simply put, they will put her under anesthesia, make an incision, cut out the blockage and clean out her hip socket, place the femoral head where it is supposed to go and put her in a cast (called a Spica cast). She will be in a cast for about 8 weeks with a cast change after those 8 weeks and another cast for about 6-8 weeks. After the cast comes off she will graduate to a rhino brace for about 3 more months full time then begin weaning out of it.

We feel very content and positive about this outcome. Yes, we would have loved to be able to have her treated sooner and out of the cast, but we know for her case this is the best path forward and will ultimately help her long term. And who knows, once the open reduction happens, her left hip could progress faster than we expect and her be out of a cast in only 8 weeks. We have realized once again what we already knew before, life is full of surprises along the way, and this is out of our control, but we will do what we need to do to help our little girl.

We cannot thank you all enough for the thoughts, prayers, and support. We were overwhelmed by all of the encouraging words through your comments, calls and texts. Thank you, thank you, THANK YOU from the bottom of my heart for the love you have poured on us. We felt wrapped in prayers on Friday.

Wishing you each a very Happy Thanksgiving with lots of joy and love.

With sincere gratitude,
Anna

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