Small Victories

We made it to 2 weeks! Small victories. We meet with Adeline’s surgeon on Monday to x-ray Adeline, go over progress and ensure her hip has not moved out of the socket. Thinking about that appointment makes me so nervous. I pray that we hear good news. If all looks good, Adeline can start sitting up again with support and the everyday will be much easier. We have her spica table, basically a table that she can sit and play at that supports her cast, ready for her when we get the green light! We hear it is a game changer. I cannot wait to put it to good use.

We are still figuring out sleep. Since she came off her medications sleep hasn’t been our friend. Adeline isn’t a fan of her limitations with the cast and she isn’t pleased that she can’t roll to her tummy. We’ve tried pillows, no pillows, rolled blankets, no blankets, her crib, our bed, and everything in between. Hopefully we can all get some sleep one of these days!

This journey is not easy, but we are getting through it one day at a time. Sometimes it feels like a minute at a time, but it helps to remind ourselves that this is all for her so that she can live a pain-free and normal life, and she won’t remember a thing of this. I try and remind myself that very often, especially at what feels like my breaking point. I find myself daydreaming about summer often, life without her cast and healthy hips. It is such a bittersweet feeling to wish away time. I feel guilty for it because I know we won’t get this precious time back, she is only a baby once, but I can’t wait to get back to normal life full of hugs, baths, meals in her high-chair and normal activities without this big purple barrier. Nevertheless, I have said it before and I will say it again, children are so resilient. While I am over here moping, Adeline is smiling, giggling, entertaining, and overall a happy baby (for a good 23 hours out of the day). Children can teach us so much.

I am looking forward to this weekend, getting outside and spending family time together. I hope you have fun plans ahead too, and if you think about it, say a quick prayer for us for Monday. We know God has a plan greater than anything we could imagine and bigger than all of this.

Much love to each of you!

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